Национальная Ассоциация организаций больных редкими заболеваниями «Генетика»

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05.03.2023

В областной Думе Смоленской области прошел «круглый стол» по вопросам медицинской помощи пациентам с редкими заболеваниями

Источник: Без формата 1 марта 2023 года депутаты Смоленской областной Думы Ольга Васильева , …

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01.03.2023

Частые проблемы редких заболеваний

Источник: Медицинская газета День редких заболеваний отмечается в разных странах в 15-й раз. Дата его …

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19.01.2023

Круглый стол на тему «Актуальные вопросы организации медицинской помощи и лекарственного обеспечения пациентов с редкими (орфанными) заболеваниями 2023-2025».

Источник: Росия 1 Вайнах, Вести Чеченской Республики, выпуск от 19.01.2023г

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26.10.2022

Медпомощь пациентам с редкими заболеваниями стала предметом обсуждения на круглом столе в ЗСК

В кубанском парламенте сегодня заместитель руководителя ЗСК – председатель комитета по вопросам здравоохранения и социальной …

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04.10.2022

В парламенте Якутии 3 октября 2022 года состоялся круглый стол на тему «Стратегические направления оказания помощи больным с редкими (орфанными) заболеваниями в Российской Федерации на примере Республики Саха (Якутия)».

Источник: Пресс-служба Ил Тумэна Круглый стол был проведен постоянным комитетом Государственного Собрания (Ил Тумэн) Республики …

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30.09.2022

В парламенте Якутии состоится круглый стол с участием членов Экспертного Совета Комитета Госдумы ФС РФ по охране здоровья по редким (орфанным) заболеваниям Источник: Aartyk.ru

Источник: Аартик В Государственном Собрании (Ил Тумэн) 3 октября 2022 года состоится круглый стол …

<img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img src="https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg" />

15.09.2022

Проблемы орфанных больных обсудили в Пскове с участием федеральных экспертов

Источник: Псковское Агентство Новостей Проблемы оказания медпомощи и лекарственного обеспечения пациентов с редкими …

<img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img src="https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg" />

14.09.2022

Проблемы орфанных больных обсудили в Пскове с участием федеральных экспертов

Источник: Псковская Лента Новостей Проблемы оказания медпомощи и лекарственного обеспечения пациентов с редкими орфанными …

<img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img src="https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg" />

14.09.2022

Проблемы орфанных больных обсудили в Пскове с участием федеральных экспертов

Источник: Псковское областное Собрание депутатов Проблемы оказания медпомощи и лекарственного обеспечения пациентов с редкими …

<img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img src="https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg" />

25.08.2022

Стратегические направления оказания помощи больным с редкими (орфанными) заболеваниями в Российской Федерации

Источник: Без Формата 25 августа в Самарской Губернской Думе в режиме ВКС по инициативе Экспертного …

<img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img src="https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg" />

15.08.2022

Парламентарии Ростовской области обсудили вопросы лечения больных с орфанными заболеваниями

Источник: Новости Ростова-на-Дону 15.08.2022, 15:00 Ростовская область на высоком уровне осуществляет помощь пациентам с орфанными …

<img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img data-src='https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg' class='lazyload' src='data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==' /><noscript><img src="https://nacgenetic.ru/wp-content/themes/genetics/img/data.svg" />

12.08.2022

Проблемные вопросы организации медицинской помощи пациентам с орфанными заболеваниями обсудили в донском парламенте

Источник: Без формата Ростов на Дону Заседание круглого стола по вопросам оказания помощи больным …

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